International Sarcoma Kindred Study Database and Biospecimen Repository, Canada

Registration Status: Completed

Objective: The purpose of this study is to create a large genetic, biological, epidemiological and clinical resource that will enable researchers to answer important questions relating to the hereditary characteristics of sarcoma. a. Primary Objective - To establish an international database and biospecimen repository to be used as a clinical and research resource. b. Secondary Objective - To utilise the International Sarcoma Kindred Registry to develop clinically useful, population‐based criteria for stratifying genetic or hereditary risk for adult‐onset sarcoma. - To evaluate community attitudes to genetic research - To make available the International Sarcoma Kindred Registry to researchers.

Registered Biobank Name International Sarcoma Kindred Study Database and Biospecimen Repository (ISKS)
Biobank Leader Beth Gentleman
Country Canada
Email for biobank inquiries
Principal Investigator Dr. Paul W. Clarkson
User Type
  • Mono: A biobank that supports a specific research project, may have few staff members, a small-scale accrual scope with little to no initial intention of releasing or distributing biospecimens to secondary parties
  • Oligo: A biobank that supports several research groups or clinical trials, may or may not be designed to release biospecimens outside their collaborative group
  • Poly: A biobank that has generally a larger accrual scope, resources, and multiple users outside the biobank proper
Poly - Collection aimed at supporting undetermined, multiple users with ethics approved research projects, through a defined access/application mechanism.
Biospecimen Collected: